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Tuberous Sclerosis Canada

Tuberous Sclerosis Canada is a non-profit organization, run by volunteers from across Canada. Our mission is to support people affected by Tuberous Sclerosis Canada and their families, as well as to support research efforts for new treatments and hopefully one day a cure. Tuberous Sclerosis is a rare genetic disease, affecting about 1 in 6000 people. People with TSC are missing a gene which suppresses tumor growth, and develop tumors in many of their major organ systems, including their brains, kidneys, skin and lungs. This can lead to serious complications including seizures, developmental delay, autism, kidney failure and even death.

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